"Batten Disease." These two words wrecked Stacey's @shiltman world. Her beloved boy, Nathan, would suffer progressive neurological impairment, blindness, seizures, dementia and eventually death. For Stacey, everyday life is managing Nathan's horrible fits, doctors, pills, loneliness, stares from strangers and anxiety of the unknown ahead.
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Stacey is doing the impossible - raising her son to die.
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Stacey, we believe you are doing a beautiful job raising your boy with his big unforgettable smile. Your courage and capacity to love leaves us breathless. On the third anniversary of Nathan's diagnosis, we are linking arms from around the world, wrapping you in love and praying for miracles.
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Today we remember Nathan. Today we remember you.
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Please REPOST and GIVE. Every dime helps make their home more handicap accessible. (Link in @themomsweloveclub profile) #loveforstacey
